the anguish of the parents for the “after them” when their children will have to face life alone, with their disability, without no one to look after. For the first state law on the “After us” try to give them an answer.
90 million euro planned for 2016
with 312 votes in favor of the unified text “Measures of assistance to people with severe disabilities without family support “was approved Tuesday afternoon at second reading by the Chamber of deputies, after the Senate amendments had sought to incorporate the suggestions of associations of family members. Instead, the Movement 5 stars, while sharing the purpose of the law. “The associations of persons with disabilities and their families have asked for more services – says the deputy M5S, Giulia Di Vita -. Instead, with the facilities provided for purely private legal transactions, the measure helps only those families who already have a disposable income, ie assets that can leave to their children; therefore, you can take advantage of the law a very narrow range of people with disabilities. ” “With this law, the State assumes a commitment to give answers to the most vulnerable people and return a bit ‘of serenity to many parents – says Ileana Argentin, first signatory of a bill later merged into unified text approved by the House -. Now we finally have concrete facts because for the first time there is a specific social fund, the public, for the “after us”, with 90 million already provided by the Stability Law for 2016 “.
What does the measure
the measure, consisting of 10 articles, regulates the measures of assistance, care and protection for the seriously disabled without family support, as they have come lacking both parents or because the same are not able to provide adequate support. The text amended by the Senate extends the protections to people with disabilities who, despite having parents still alive, can not benefit from their support. It is therefore planned to gradually take charge of the person concerned already in existence during the life of the parents, that “when we” and also specifies that ‘the measures were agreed with the involvement of stakeholders and respecting the will of the people with severe disabilities, where possible their parents or protecting consumer interests. ”
Pending the Lep
L ‘Article 2 refers to the decree to be approved on the essential levels of welfare benefits (Lep) in the social, rights which should be ensured throughout the national territory. In particular, pending the completion of the definition of Lep proceedings, the Minister of Labour and Social Policy, in consultation with the economy and subject to agreement in the Joint State-Regions Conference, defines the service objectives for performance to be granted by decree to be issued within six months from the date of entry into force of the law.
Stay home
The Law establishing (art. 3) the “Fund for assistance to persons with severe disabilities without family support” at the Ministry of Labour and social policy, with a budget of 90 million euro for 2016, 38, 3 million for 2017 and 56.1 million per year as from 2018. the Fund is intended, in particular, to “activate and strengthen programs designed to promote de-institutionalization paths, support to home care in homes or apartment-groups that reproduce housing and relational conditions of the family home and also take account of the best opportunities offered by new technologies, in order to prevent the isolation of people with severe disabilities. ”
Limits to housing solutions extrafamiliari
following criticism of the associations of persons with disabilities and their families who are afraid, after them, the institutionalization of their loved ones, the Senate limits were introduced to the possibility of resorting to extra-familial housing solutions, albeit temporary, and in case of emergency. Now the new text of Article 4 provides that it will be possible to realize only ‘where necessary and in any case, on a residual basis, in the best interests of persons with severe disabilities, interventions for the detention in a non-family housing solution for addressing any situations emergency, in accordance with the will of persons with severe disabilities, where possible, their parents or protecting consumer interests. ”
Insurance policies, Trust and other legal transactions
For the insurance premiums on the ‘risk of death aimed at the protection of persons with severe disabilities ascertained “the amount that you can deduct from taxes increased from 530 to 750 Euros. One of the most controversial points of the law passed at first reading by the Chamber, was the trust (legal institution that guarantees legal protection through a relationship of trust between those who have a good and entrusts it to a person who has to administer in his name ed ) in favor of people with severe disabilities. The main concern of parents who do not have a heritage to leave to their children is that they can be admitted to institutions or sheltered housing, when they’re not around anymore. The Senate granted several requests of associations, extending exemptions and tax benefits provided for trusts to other existing legal transactions, so with a greater chance for families to choose from. The new Article 6 provides that transfers of assets (tangible or intangible) due to death, through donation, trusts or free of charge, will be exempt from paying inheritance and gift on the condition that “pursue as exclusive purpose the inclusion social, care and support of persons with severe disabilities, in favor of which are set up. ”
June 14, 2016 (edited June 14, 2016 | 18:37)
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